Kayley, a 20-year-old college student from Tennessee, suffers from Loeys-Dietz syndrome (LDS), a rare genetic disorder that weakens connective tissue, leading to severe health issues like aneurysms and heart defects. Despite the condition's low life expectancy and numerous surgeries, Kayley remains optimistic and focused on living life to the fullest. She describes her condition as 'The Melting Disorder' due to the weakened state of her body's connective tissues, which affects her organs and skeletal system.
A Michigan mom credits her baby with saving her life after being diagnosed with a rare genetic condition that led to a life-threatening aortic dissection during pregnancy. Despite initial misdiagnosis, she underwent emergency surgery and gave birth to a healthy daughter. Further testing revealed Loeys-Dietz syndrome, necessitating future procedures and ruling out future pregnancies, but she is grateful to be alive and cherishes every day with her "miracle" daughter.
A Michigan mom credits her baby with saving her life after being diagnosed with a rare genetic condition leading to a life-threatening aortic dissection during pregnancy. Despite initial misdiagnosis, she underwent emergency surgery and gave birth to a healthy daughter. Further testing revealed Loeys-Dietz syndrome, necessitating future procedures but leaving her grateful to be alive and able to watch her "miracle" daughter grow up.
