Identical twins with Marfan syndrome, a genetic condition affecting connective tissues, both needed open heart surgery to repair aortic aneurysms after their mother experienced a life-threatening aortic dissection. Following their decision to undergo surgery on the same day, the procedures were successful, and they are now focused on recovery and regaining their strength, grateful for the opportunity to live normal, active lives without the looming threat of a medical emergency.
Amanda Banic, a 35-week pregnant woman, experienced severe chest pain dismissed as indigestion and panic attack by doctors, but it turned out to be a near-fatal aortic dissection. Her husband's insistence on returning to the hospital saved her life, leading to emergency open-heart surgery and a cesarean section to deliver her baby. Amanda's recovery has been challenging due to a connective tissue disorder, but she remains grateful for her life and encourages others to advocate for their health.
A Michigan mom credits her baby with saving her life after being diagnosed with a rare genetic condition that led to a life-threatening aortic dissection during pregnancy. Despite initial misdiagnosis, she underwent emergency surgery and gave birth to a healthy daughter. Further testing revealed Loeys-Dietz syndrome, necessitating future procedures and ruling out future pregnancies, but she is grateful to be alive and cherishes every day with her "miracle" daughter.
A Michigan mom credits her baby with saving her life after being diagnosed with a rare genetic condition leading to a life-threatening aortic dissection during pregnancy. Despite initial misdiagnosis, she underwent emergency surgery and gave birth to a healthy daughter. Further testing revealed Loeys-Dietz syndrome, necessitating future procedures but leaving her grateful to be alive and able to watch her "miracle" daughter grow up.
