Living with a Rare Condition: The Threat of Internal Melting
Originally Published 1 year ago — by Daily Mail
Kayley, a 20-year-old college student from Tennessee, suffers from Loeys-Dietz syndrome (LDS), a rare genetic disorder that weakens connective tissue, leading to severe health issues like aneurysms and heart defects. Despite the condition's low life expectancy and numerous surgeries, Kayley remains optimistic and focused on living life to the fullest. She describes her condition as 'The Melting Disorder' due to the weakened state of her body's connective tissues, which affects her organs and skeletal system.