Moebius syndrome is a rare neurological disorder characterized by facial paralysis and inability to move the eyes sideways, caused by underdevelopment of cranial nerves VI and VII. Its incidence varies globally, and causes include genetic mutations and prenatal drug exposure. Symptoms include facial weakness, eye movement limitations, feeding difficulties, and sometimes limb abnormalities. Treatments are personalized, involving surgeries, therapy, and supportive care to improve function and quality of life.
Tayla Clement, 26, was born with Moebius syndrome, a rare neurological disorder that causes facial paralysis and inhibited eye movement. Despite facing bullying and unsuccessful surgery to correct her inability to smile, Clement has found purpose as a sports content creator and advocate for inclusion in sports. She has used her platform to connect with others with syndromes or disabilities and aims to educate others on treating young people who feel unseen or unheard. Clement considers her condition to be a "greatest gift" and embraces her uniqueness, smiling in her own way.
Paula Paiva, a Brazilian influencer, has Moebius syndrome, a rare condition causing facial paralysis and the inability to smile. Despite enduring bullying and cyberbullying, she has become an online advocate for her disorder, sharing her journey and raising awareness. While facing challenges and undergoing therapies and surgeries, she has found success as an influencer, gaining a large following and living her dream, despite the hurtful comments she receives.
