All articles tagged with #boston childrens hospital
Four-year-old Lucas, diagnosed with Duchenne Muscular Dystrophy, became the first patient in Massachusetts to receive a new gene therapy approved by the FDA. His parents noticed significant improvements in his mobility just weeks after the treatment. While it's still early to determine the full impact, the family is hopeful and capturing new milestones, as the therapy has given them hope for the future.
A Massachusetts woman pleaded guilty to calling in a hoax bomb threat at Boston Children's Hospital, which had been facing harassment over its surgical program for transgender youths.
Hanna Carlson, an 8-year-old girl from Gardiner, Maine, lives with chronic pain and joint pain caused by hypermobility syndrome. Her condition requires extra energy to keep her body moving properly. Hanna's family is currently seeking a diagnosis for Ehlers-Danlos syndrome, a related disorder. Despite her health challenges, Hanna remains active and participates in a congenital myopathy research study at Boston Children's Hospital. Recently, she and her family attended Family Advocacy Day in Washington, D.C., to advocate for children's hospitals. Hanna's condition is managed through therapy and strengthening exercises, and she hopes to join the robotics club at school in the fall.
Boston Children's Hospital has been ranked as the second-best pediatric hospital in the United States, losing the top spot for the first time since 2014 to Cincinnati Children's Hospital Medical Center, according to the U.S. News and World Report's latest rankings. The rankings were based on three quality measures: clinical outcomes, efficient coordination of care, and equity and inclusion commitments, and providing care-related resources.
Boston Children's Hospital has been bumped to No. 2 on the latest edition of the annual ranking of the best hospitals for children in the country by U.S. News & World Report, after 9 years atop the list. Cincinnati Children's Hospital Medical Center moved into the top spot this year. The hospital rankings are based on data collected through surveys sent to nearly 200 hospitals and thousands of doctors nationwide.
A woman's unborn baby was diagnosed with a rare pre-birth condition and given a 1% chance of survival. The woman flew to Boston for a surgery that had never been attempted before. After roughly a dozen scans and procedures, doctors completed the first successful fetal brain surgery two days earlier. The baby, named Denver, has since returned to her family's Louisiana home, where she's maturing like any healthy baby. The success of Denver's surgery is the first step toward saving more babies' lives.
Doctors from Boston Children's Hospital and the Brigham and Women's Hospital collaborated on a trial to treat vein of Galen malformation (VOGM) for a fetus, which included performing brain surgery while the fetus was still in the womb. The baby was born in March and did not require any further treatment. VOGM is a rare blood vessel abnormality inside the brain that can cause heart failure if left untreated. This procedure was the first attempt at the treatment and is being conducted on around 20 babies. There were no negative effects on the baby's brain.
Doctors at Brigham and Women's Hospital and Boston Children's Hospital have performed groundbreaking brain surgery on a baby still in the womb to treat a rare blood vessel abnormality inside the brain known as "Venus of Galen malformation." The condition occurs when the blood vessel that carries blood from the brain to the heart doesn't develop correctly, leading to an overwhelming amount of blood stressing the veins and heart and can lead to a cascade of health problems. The team was able to repair the malformation while the baby was still in the uterus, using ultrasound guidance, a needle similar to those used for amniocentesis, and tiny coils that were placed directly into the abnormal blood vessels to stop blood flow.
Doctors at Boston Children's Hospital have performed brain surgery on a baby inside the womb to fix potentially deadly damage to blood vessels, saving the infant from suffering heart failure and a stroke after birth. The rare pre-natal condition is known as Vein of Galen malformation (VOGM), which occurs in as many as one in every 60,000 births. The groundbreaking surgery was performed using ultrasound at 34 weeks and two days gestational age. The infant is now home and "progressing remarkably well" with no signs of negative effects on the brain. Experts have described the study as "pioneering" and "very impactful."
Doctors at Boston Children's Hospital performed a successful fetal surgery on a baby diagnosed with vein of Galen malformation, a rare brain condition that can lead to heart failure and severe neurological issues. The surgery, which involved inserting tiny coils to slow down blood flow, was performed before the baby was born and is among the first for this condition. The baby, named Denver, was born two days after the surgery and is now thriving without any indication of needing additional interventions. The procedure was part of a clinical trial run by Brigham and Women's and Boston Children's hospitals.
A 6-year-old boy with a degenerative brain disease has received a groundbreaking gene therapy at Boston Children's Hospital, which involves modifying stem cells to add a functional gene to compensate for a defective one. The one-time treatment costs $3 million per patient, but doctors expect it to save the boy's life.
The Heritage Foundation has filed an ethics complaint against Rep. Alexandria Ocasio-Cortez for "falsely accusing" and "defaming" the creator of the Libs of TikTok Twitter account, Chaya Raichik. The complaint argues that Ocasio-Cortez violated a House ethics rule by "knowingly and intentionally defaming Chaya Raichik, creator of the viral Libs of TikTok account, falsely accusing her of lying and disseminating disinformation." The complaint defends Raichik's view that Boston Children's Hospital performs gender affirming hysterectomies on young girls.