
Brighton doctor launches AI-powered charity to repurpose drugs for ultra-rare brain disorder
A Brighton emergency physician, Prof Rob Galloway, launches Rare People - The Research Charity after his daughter Frankie is diagnosed with the ultra-rare DeSanto Shinawi syndrome. The charity will fund clinical trials of repurposed medicines identified by artificial intelligence to treat rare genetic brain disorders, inspired by Mayo Clinic cell studies suggesting possible benefit from an epilepsy drug. The aim is to include UK children in trials and, eventually, expand to adults, with support from Brighton & Hove Albion FC at the launch.


