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Neurofibromatosis

All articles tagged with #neurofibromatosis

entertainment1 year ago

Sebastian Stan Transforms in A24's Dark Comedy 'A Different Man' Trailer

A24 has released the trailer for "A Different Man," starring Sebastian Stan as Edward, a man with neurofibromatosis who undergoes facial reconstructive surgery. The film, directed by Aaron Schimberg, explores themes of beauty, identity, and societal perceptions. Stan, who won the best actor prize at the Berlin Film Festival for his role, shares the screen with Adam Pearson, an actor with the same condition. The film premieres on September 20.

via Variety|
#a24#entertainment#facial-deformity
health1 year ago

"Rare Disease Causes Woman to Carry 20-Pound Neck Tumor"

A woman in Germany with a rare genetic disease, NF-1 neurofibromatosis, developed a 20-pound tumor on her neck, causing balance issues and pain. After finding a surgeon in Los Angeles, she underwent a risky six-hour surgery to remove the tumor, experiencing immediate relief and joy. Another woman from Texas also sought help for a growth on her butt, which was successfully removed in a one-hour surgery. Both cases were featured on TLC's new show, "Take My Tumor," shedding light on the challenges of living with rare diseases and the hope for successful treatment.

via Daily Mail|
#health#neurofibromatosis#rare-disease
health1 year ago

"Life-Changing Surgery Restores Woman's Ability to See Her Own Face After Battling Rare Disease"

Charmaine Sahadeo, a woman with a rare multi-system disorder called NF-1 neurofibromatosis, underwent over 60 hours of surgery while conscious to remove thousands of tumors covering her body. Dr. Ryan Osborne, a head and neck surgical oncologist, performed 24 operations over a ten-week period, allowing Charmaine to finally see her own face again and breathe better. The surgeries, featured on TLC's Take My Tumor, have given Charmaine a new lease on life, and she now feels beautiful and fantastic.

via UNILAD|
#health#medical-miracle#neurofibromatosis
health1 year ago

"Rare Disease Causes Woman to Develop Thousands of Tumors, Facing Public Stigma and Physical Challenges"

Charmaine Sahadeo from Trinidad has been diagnosed with NF1 neurofibromatosis, causing painful bubble-like tumours all over her body, including her face and right leg. The condition has worsened over the years, leading to her inability to walk for more than a few minutes and impacting her personal and professional life. Seeking help from Dr. Ryan Osborne in Los Angeles, she faces the prospect of multiple surgeries to remove the tumours, as her condition has reached a critical point.

via NDTV|
#health#medical-intervention#neurofibromatosis
health1 year ago

"Rare Disease Causes Woman to Develop Thousands of Life-Threatening Tumours All Over Body"

Charmaine Sahadeo, 42, suffers from a rare genetic condition called NF-1 neurofibromatosis, causing life-threatening tumours to grow all over her body, obstructing her breathing, eating, and walking. After undergoing 60 hours of surgery while conscious, she experienced significant relief and improvement in her quality of life, expressing joy and gratitude for the transformation. Her journey was documented in a TLC mini-series titled Take My Tumor, shedding light on the challenges she faced and the extensive surgical intervention she underwent.

via LADbible|
#health#life-threatening-tumours#neurofibromatosis
event1 year ago

"Charity Undie Runs: Braving the Cold to Raise Awareness"

The annual Cupid's Undie Run in Cleveland will see hundreds of participants running in their underwear to raise funds and awareness for neurofibromatosis, a genetic disorder causing tumors to grow on nerves throughout the body. The event, held in various cities around Valentine's Day, aims to destigmatize the condition and raise money for the Children's Tumor Foundation. Participants have raised over $80,000 locally for the 2024 event, with the run scheduled to start at 2 p.m. on Saturday at the House of Blues in Downtown Cleveland.

via News 5 Cleveland WEWS|
#awareness#cleveland#cupids-undie-run
philanthropy2 years ago

"Generous Gilbert Family Donates $375M to Advance Medical Research and Treatment"

Dan Gilbert, founder of Quicken Loans, and his wife Jennifer have donated $375 million towards the construction of a physical medicine and rehabilitation facility in Detroit, in honor of their late son who suffered from neurofibromatosis. The facility will be part of Henry Ford Health's campus expansion and will provide care for conditions such as stroke recovery and spinal cord injury. The Gilberts also announced the establishment of the Nick Gilbert Neurofibromatosis Research Institute in partnership with Henry Ford Health and Michigan State University Health Sciences. The total cost of construction and operation for both initiatives is estimated to be $439 million over 10 years.

via Detroit Free Press|
#dan-gilbert#detroit#medical-research
health2 years ago

From Chickenpox Scar to Tumors: A Woman's Inspiring Journey of Resilience and Defying Trolls

Mercedes Christensen, a 52-year-old mother from Idaho, has spoken out against trolls who have criticized her for passing on her rare genetic condition, neurofibromatosis type 1 (NF1), to her children. NF1 causes benign tumors to form under the skin and along the nerves. Christensen was diagnosed at 19 and initially had only a few tumors, but after giving birth to her youngest daughter, her condition worsened rapidly. Her daughters, now 27 and 24, were also diagnosed with NF1. Despite facing negativity and guilt, Christensen has chosen to embrace self-acceptance and not respond to negativity with negativity.

via Daily Mail|
#genetic-condition#health#idaho-mother
sports2 years ago

Tragic Loss: Cavaliers Owner's Son Passes Away at 26

Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert, has died at the age of 26 due to complications related to neurofibromatosis (NF1), a genetic condition that causes non-cancerous tumors to grow on the brain, spinal cord, and skin. Gilbert rose to prominence when he represented the Cavs at the 2011 NBA draft lottery, which was won by Cleveland. The Cavs later used the pick on Duke PG Kyrie Irving, who became a perennial All-Star and later paired with Cavs legend LeBron James to win a championship in 2016. The younger Gilbert represented the Cavs at several more draft lotteries, including when Cleveland earned the No. 1 pick in 2013 and 2014.

via MLive.com|
#cleveland-cavaliers#dan-gilbert#nba-draft-lottery
sports2 years ago

Cavaliers Owner Dan Gilbert's Son Nick Dies at 26.

Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert, passed away at the age of 26 due to complications related to neurofibromatosis 1. Gilbert was known for being the Cavs' good luck charm during several NBA Draft Lotteries and for his signature bow ties. The team honored Gilbert and others with neurofibromatosis during their 2022-23 season. The Gilbert family founded NF Forward, a nonprofit organization that raises awareness about neurofibromatosis and funds cutting-edge research about the disorder. A funeral service will be held for Gilbert in Michigan on May 9.

via TODAY|
#cleveland-cavaliers#dan-gilbert#nba
sports2 years ago

Tragic Loss: Cavaliers Owner's Son Passes Away at 26

Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert, has died at the age of 26 due to complications related to neurofibromatosis 1 (NF1), a genetic condition that causes tumors to grow along nerves. Nick became known to NBA fans as a bowtie-wearing talisman for Cleveland in the draft lottery, where the team defied steep odds and won the No. 1 pick in 2011, which they used to select Kyrie Irving. The Gilbert family established a nonprofit organization, NF Forward, to support research of neurofibromatosis.

via The Washington Post|
#cleveland-cavaliers#dan-gilbert#nba-draft-lottery
sports2 years ago

Cavaliers Owner Dan Gilbert's Son Nick Dies at 26.

Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert, has died at the age of 26. Gilbert, who had neurofibromatosis, became a good luck charm for the team at NBA draft lotteries, famously quipping "What's not to like?" when the Cavs won the No. 1 pick in 2011. The team dedicated their 2022-23 season to him, wearing bowtie emblems on their warmups to raise awareness for the disease. Gilbert's funeral will be held on Tuesday.

via NBC4 WCMH-TV|
#cleveland-cavaliers#dan-gilbert#nba-draft-lottery
sports2 years ago

Cavaliers Owner Dan Gilbert's Son Nick Dies at 26

Nick Gilbert, the 26-year-old son of Cleveland Cavaliers owner Dan Gilbert, has died from complications related to neurofibromatosis, a genetic disorder he was diagnosed with at 15 months old. Nick was known as the Cavs' good luck charm at NBA draft lotteries, where the team won the top pick in 2011, 2013, and 2014. He is survived by his parents and four siblings. A funeral service will be held on Tuesday in Michigan.

via USA TODAY|
#cleveland-cavaliers#dan-gilbert#nba-draft
sports2 years ago

Cavaliers Owner Dan Gilbert's Son Nick Dies at 26.

Nick Gilbert, son of Cleveland Cavaliers owner Dan Gilbert, has died at the age of 26 due to neurofibromatosis, a genetic condition causing non-cancerous tumors to grow along the nerves. Nick was known for representing the Cavaliers at the NBA draft lottery and was present when the team got the No. 1 pick twice. The Gilbert family launched a foundation in 2017 to fund research grants towards finding a cure for Type 1 neurofibromatosis. The Cavaliers dedicated the past season to Nick and other neurofibromatosis patients, wearing bowtie emblems during their warmups.

via Yahoo Sports|
#cleveland-cavaliers#dan-gilbert#nba-draft
sports2 years ago

Cavaliers Owner's Son Nick Gilbert Passes Away at 26.

Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert, has died at the age of 26. Gilbert, who had neurofibromatosis, became a good luck charm for the team at NBA draft lotteries and represented them at several events. The Cavaliers dedicated their 2022-23 season to him and wore bowtie emblems on their warmups to raise awareness for the disease. Gilbert's funeral will be held on Tuesday.

via ABC News|
#cleveland-cavaliers#dan-gilbert#nba