
Wisconsin grapples with hidden hypermobile EDS amid diagnosis delays
Wisconsin faces a pervasive, under-recognized case of hypermobile Ehlers-Danlos Syndrome (hEDS): about 12,000 residents may have it, yet only a handful of doctors can diagnose it and patients often wait 10–16 years for answers. UW Health clinicians are teaching other providers, adding Beighton-score–based diagnostic workups, and pushing for more education and access to care, while advocacy groups push public awareness and a state-wide awareness month to address a fragmented, multi-specialty care landscape.













