Tag

Rare Conditions

All articles tagged with #rare conditions

Living with a Rare 'Suicide Disease': A Survivor's Story
health1 year ago

Living with a Rare 'Suicide Disease': A Survivor's Story

A man known as Josh has survived multiple near-death experiences and battles trigeminal neuralgia (TGN), a condition so painful it's called 'suicide disease.' Despite surviving incidents like being stillborn and a car accident, Josh's TGN, triggered by a sinus infection, causes excruciating pain likened to being burned alive. While he has been symptom-free for 12 years, TGN often requires surgical intervention for relief. The condition affects the trigeminal nerve, causing severe facial pain, and is estimated to have 10,000 to 15,000 new cases annually in the US.

"32 Bizarre Medical Cases You Won't Believe"
health1 year ago

"32 Bizarre Medical Cases You Won't Believe"

The article explores 32 unusual medical cases, detailing rare conditions and unique patient experiences, including a man with cement in his heart, a toddler with a fetus in her brain, and a student who can voluntarily change his pupil size. Some cases had successful treatments, while others were fatal, highlighting the complexities and mysteries of the human body.

"Major Study Reveals Covid Vaccine Links to Heart and Brain Conditions"
health-vaccines2 years ago

"Major Study Reveals Covid Vaccine Links to Heart and Brain Conditions"

ABC health expert Dr. Norman Swan acknowledged that the largest study on Covid vaccine side effects revealed unexpected rare conditions associated with Pfizer, Moderna, and AstraZeneca shots, including Guillain-Barre syndrome and acute disseminated encephalomyelitis. Despite these findings, Dr. Swan emphasized that these side effects were rare, likening the probability of experiencing them to "winning the biggest lotto three times in your lifetime." The study, involving 99 million vaccine recipients across eight countries, identified increased risks of certain medical afflictions but stressed that the absolute risk of developing any of these conditions remains small.

Living with Aquagenic Urticaria: A California Woman's Story
health2 years ago

Living with Aquagenic Urticaria: A California Woman's Story

Tessa Hansen-Smith, a young woman from Fresno, California, is living with Aquagenic Urticaria, a rare condition that makes her allergic to water. She developed the allergy at a young age and has experienced worsening symptoms over the years. Water causes itching, rashes, and hives on her skin, and drinking it leads to a burning sensation in her throat and body. Tessa's positive outlook is supported by her family and friends, but she faces skepticism from others. Despite her challenges, she is determined to help others with rare conditions and has shared her story in a book and on social media. Tessa hopes to raise funds to contribute to her family's medical expenses and dreams of pursuing a nursing degree to approach patients with compassion and belief in their symptoms.

Living with Aquagenic Urticaria: A California Woman's Story
health2 years ago

Living with Aquagenic Urticaria: A California Woman's Story

Tessa Hansen-Smith, a young woman from Fresno, California, is living with Aquagenic Urticaria, a rare condition that makes her allergic to water. She developed the allergy at a young age and has experienced worsening symptoms over the years. Water causes itching, rashes, and hives on her skin, and drinking it leads to a burning sensation in her throat and body. Tessa's positive outlook is supported by her family and friends, but she faces skepticism from others. Despite her challenges, she is determined to help others with rare conditions and has shared her story in a book and on social media. Tessa hopes to raise funds to contribute to her family's medical expenses and dreams of pursuing a nursing degree to approach patients with compassion and belief in their symptoms.

Living with Aquagenic Urticaria: A California Woman's Story
health2 years ago

Living with Aquagenic Urticaria: A California Woman's Story

Tessa Hansen-Smith, a young woman from Fresno, California, is living with Aquagenic Urticaria, a rare condition that makes her allergic to water. She developed the allergy at a young age and has experienced worsening symptoms over the years. Water causes itching, rashes, and hives on her skin, and drinking it leads to a burning sensation in her throat and body. Tessa's positive outlook is supported by her family and friends, but she faces skepticism from others. Despite her challenges, she is determined to help others with rare conditions and has shared her story in a book and on social media. Tessa hopes to raise funds to contribute to her family's medical expenses and dreams of pursuing a nursing degree to approach patients with compassion and belief in their symptoms.

Unraveling the Enigma: The Nameless Diseases Plaguing Humanity
health2 years ago

Unraveling the Enigma: The Nameless Diseases Plaguing Humanity

Undiagnosed diseases, which affect an estimated 350 million people worldwide, can be particularly devastating for children and their families. These conditions, characterized by a lack of known cause despite extensive evaluation, often leave parents feeling lost and alone. The search for a unifying diagnosis becomes crucial in understanding the course of the disease and potential treatments. However, the lack of genetic expertise among physicians and limited funding for research pose significant challenges. Despite the tragic loss of their three children to undiagnosed diseases, one family has established a foundation and organized a world congress to raise awareness and support research efforts in this field.