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Make A Wish Foundation

All articles tagged with #make a wish foundation

human-interest2 years ago

"Des Moines Man Overcomes Challenges, Joins RAGBRAI with Adaptive Bike"

Quincy Hostager, a 21-year-old man diagnosed with Dravet syndrome, a severe form of epilepsy, will be riding in a portion of RAGBRAI with the help of an adaptive bike. The bike, received as a gift from the Make-A-Wish Foundation, allows Quincy to bike with his family, with his dad pedaling behind him. Quincy's ride in RAGBRAI will also serve as his high school graduation party, with family and friends gathering to celebrate his accomplishments. The family is also raising funds for a great cause, promoting the idea that anyone, regardless of ability, can enjoy biking.

via KCCI Des Moines|
#adaptive-bike#dravet-syndrome#graduation-party
human-interest2 years ago

Heartbroken Moms Seek Help Finding Toys Containing Sons' Ashes Lost on Disney Trip

A stuffed elephant named "Bruce" was a constant companion to Gabryel, a boy born with a rare chromosomal abnormality who underwent over 50 medical procedures before passing away at age 7. The elephant, which contained a small bag of Gabryel's ashes, went missing during a family trip to Florida for what would have been Gabryel's ninth birthday. His mother, Liz Atkinson, has launched a search for the beloved toy, which has been a source of comfort to her family.

via The Washington Post|
#family#human-interest#loss
health2 years ago

12-year-old given one year to live defies odds, turns 30 without all-clear.

A man diagnosed with a brain tumor at age 12 and told he had only one year to live has celebrated his 30th birthday without ever hearing he's cancer-free. The man shared his story of survival over the past 18 years, going on to get married, have children, and even work in the hospital where he received his diagnosis. He was diagnosed with pilomyxoid astrocytoma, an aggressive cancer with poor survival rates, and underwent surgery and radiation therapy. While he lives a relatively normal life, he still suffers from memory loss and has to carry a small notebook with him to write things down.

via The Mirror|
#brain-tumor#cancer#health
health2 years ago

Man Defies Odds, Celebrates 30th Birthday Despite Terminal Diagnosis at 12

A man diagnosed with a rare brain tumor at the age of 12 and given only a year to live is still alive 18 years later. The cancer survivor, who is married and has two children, now works at the hospital where he was diagnosed and treated as a child. He claims that he was one of only four people worldwide to have ever been diagnosed with the cancer by 2005, and that his doctors had no idea why his surgery and treatment were so successful. He was even granted his last wish by the Make-A-Wish Foundation, which saw his family whisked off for a holiday in Hawaii.

via Daily Mail|
#brain-tumor#cancer#health
sports2 years ago

John Cena's WrestleMania 39 Losses and Tributes.

John Cena sends a positive message to the WWE Universe after his controversial loss to Austin Theory at WrestleMania 39, focusing on his entrance that featured children from the Make-A-Wish Foundation. Former WWE Champion The Miz questioned Austin Theory's abilities ahead of his match against Cena, wondering if he was all hype. Theory successfully defended the United States Championship against Cena with a low blow and A-Town Down.

via Sportskeeda|
#austin-theory#john-cena#make-a-wish-foundation
health2 years ago

Make-A-Wish Foundation changes policy for cystic fibrosis patients' wishes.

The Make-A-Wish Foundation has announced that from next year, people with cystic fibrosis will no longer automatically qualify for a wish, as the illness is, for many people, far less of a threat than it once was. The charity will now assess eligibility on a case-by-case basis. The decision reflects the ongoing life-changing advances in cystic fibrosis research and treatment. Drugs called CFTR modulators have become more available, which tackle the protein problem that causes the illness. Life expectancy has been increasing for people with CF, jumping from 38 years a decade ago to 53 years for babies born between 2017 and 2021.

via The Guardian|
#cftr-modulators#cystic-fibrosis#health
health2 years ago

"Make-A-Wish" Changes Policy on Cystic Fibrosis Eligibility

The Make-A-Wish Foundation will no longer automatically grant wishes to children with cystic fibrosis starting in 2024 due to major improvements in treatments for the disease. Children with cystic fibrosis will still be considered for a wish on a case-by-case basis if their condition is accompanied by additional complications or factors that make their situation critical. The decision was made in collaboration with the Cystic Fibrosis Foundation to reflect the nuances of living with the disease. Advances in medical treatments have resulted in immense improvements in patients' quality of life, and many people with cystic fibrosis are now living much longer. 41% of all people with cystic fibrosis and 52% of children under age 10 are on Medicaid.

via BuzzFeed News|
#cystic-fibrosis#health#make-a-wish-foundation