Unlocking the Power of Genetic Information: Surveys Optional

Biobanks, repositories that store genetic data and other biospecimens, are increasingly being used for research purposes. However, concerns have been raised about the informed consent process and the potential misuse of genetic data. A recent study found that even when participants choose not to respond to survey questions, their genetic data can reveal information about their education, health, and income levels. While genetic data is de-identified and used at the aggregate level, there is a need for improved transparency and understanding of how biobanks use participants' data to ensure informed consent and protect privacy.