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Mitochondrial Disease

All articles tagged with #mitochondrial disease

health2 years ago

Tragic End for Indi Gregory, U.K. Baby in Legal Battle

An 8-month-old baby girl named Indi, who suffered from a rare and incurable condition called mitochondrial disease, has died after a high-profile legal battle in the U.K. to continue her treatment. Despite her parents' efforts to keep her on life support and transfer her to a pediatric hospital in Rome, the court ruled in favor of the doctors, who believed it was in Indi's best interest to remove life support. The family's fight highlighted the challenges of balancing parental autonomy and medical authority in end-of-life care for children. Indi's death has sparked international support and raised questions about the boundaries of medical decision-making.

via The Washington Post|
#baby-girl#end-of-life-care#health
health2 years ago

Tragic End for Indi Gregory: Sick Baby at Center of UK Legal Battle Dies

Indi Gregory, an 8-month-old baby suffering from mitochondrial disease, has died in a hospice after her life support was withdrawn. Her parents had fought to continue life support in hopes of experimental treatments, while doctors argued that she had no awareness of her surroundings and should be allowed to die peacefully. The case, which involved a legal battle between her parents, British health officials, and the Italian government, highlights the ongoing debate over parental rights and the treatment of terminally ill children in the UK.

via ABC News|
#health#indi-gregory#legal-battle
health2 years ago

"UK Judges Uphold Controversial Decision to Remove Life Support from Critically Ill Infant"

An 8-month-old baby in the UK, suffering from mitochondrial disease, has been removed from life support after a legal battle to have her transferred to Italy for treatment. Despite appeals from the parents and the Italian government, UK judges ruled to end her life support. Doctors caring for the baby stated that her treatment caused pain and was ineffective, advising that she be allowed to peacefully die. The parents had sought to send her to Italy for experimental treatment. The court criticized the parents' use of legal tactics and stated that decisions are made based on the child's best interest.

via USA TODAY|
#court-ruling#health#legal-battle
health2 years ago

"UK Judges Uphold Decision to Withdraw Life Support from Critically Ill Baby Indi Gregory"

Life-support treatment has been withdrawn from Indi Gregory, an eight-month-old baby girl with mitochondrial disease, after her parents lost their legal battle to continue treatment. The family's appeal to take her home was rejected, and she has now been moved to a hospice. Despite her parents' wishes, judges ruled that limiting treatment would be lawful and in Indi's best interests. Specialists had argued that the treatment she was receiving was causing pain and was futile.

via BBC.com|
#health#hospice#indi-gregory
health2 years ago

Parents' Fight for Terminally Ill Infant's Life Triumphs Over Judge's Ruling

An 8-month-old infant in the UK, suffering from a degenerative mitochondrial disease, has been granted more time to live after her parents successfully appealed a judge's ruling to remove her from life support. The parents are seeking the right to continue her treatment overseas, specifically at a Catholic pediatric hospital in Rome. The Court of Appeals will hear their case on November 10, and until then, doctors are not allowed to remove the infant from life support. The Italian government has been involved in pressing for custody of the child, and the case is becoming increasingly international.

via New York Post |
#appeal#health#infant
health2 years ago

UK Court Denies Teen's Plea for Autonomy in Care Decision Due to Rare Disorder

A UK court has ruled that a 19-year-old critically ill female patient with a rare genetic mitochondrial disease cannot make her own decisions about continuing her medical care, despite her desire to pursue experimental treatment. The patient, known as "ST," has spent the past year in the ICU and requires a ventilator, feeding tube, and regular dialysis. Her doctors believe she is "actively dying" and should receive palliative care, while her family argues that she is conscious and able to communicate. The court has determined that "ST" is mentally incapable of making decisions for herself and that her future care should be determined by the Court of Protection.

via Fox News|
#end-of-life-care#health#medical-decision-making