Healthy Baby's Sudden Decline Due to Rare, Unknown Disorder
A young boy named Jack, born prematurely and initially healthy, was diagnosed with a rare, terminal genetic disorder called INAD, which leads to progressive loss of motor and cognitive functions. Despite no current cure, a promising gene therapy is in development, and a community-funded effort is underway to fund clinical trials that could extend Jack's life and improve his quality of life. The family remains hopeful and focused on making the most of their time together.