ALS Advocate Leah Stavenhagen Dies at 33, Leaving a Lifeline for Young Women with ALS
Leah Stavenhagen, founder of Her ALS Story, died at 33 after a terminal ALS diagnosis. She launched the nonprofit in 2021 to connect young women living with ALS, debunk misconceptions about the disease, and provide a supportive community that hosts annual retreats and funds for a 2026 trip. Her death was announced by the organization on Instagram, highlighting her leadership and impact on young women facing ALS.