A new drug, tofersen, shows promise in slowing or reversing symptoms of a rare form of ALS by targeting the SOD1 mutation, with some patients experiencing significant improvements and reduced risk of death, marking a potential breakthrough in ALS treatment.
Shionogi plans to acquire global rights to Tanabe Pharma's RADICAVA (edaravone), a drug for ALS, to strengthen its presence in rare diseases and expand its rare disease portfolio, including establishing a strong U.S. commercial platform with a $2.5 billion investment.
A Nebraska mother of two, Megan Decker, was diagnosed with ALS after initially mistaking her symptoms for fatigue, leading her family to raise funds for an accessible home and focus on creating lasting memories as her condition progresses rapidly.
A group of young women diagnosed with A.L.S. gather annually on Cape Cod to share stories, support each other, and find moments of joy despite their challenging condition, highlighting their resilience and the unique community they have built.
Eric Dane will guest star in Season 2 of 'Brilliant Minds' as a firefighter with ALS, drawing from his real-life diagnosis, and on-set photos have been released. The show explores the human mind through the lens of neurologist Dr. Oliver Wolf, with Dane's character facing personal struggles related to his illness.
Eric Dane, who announced his ALS diagnosis earlier this year, will guest star in 'Brilliant Minds' Season 2 as a firefighter with ALS, highlighting his personal health journey while the series explores medical mysteries led by neurologist Oliver Wolf.
Brooke Eby, diagnosed with ALS at 33, shares her journey living with the disease, highlighting her use of humor and social media to raise awareness, her daily routines, and her efforts in fundraising and advocacy, despite her rapidly declining health.
A recent study reveals a strong geographic link between amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS), suggesting shared environmental or social factors influence their distribution, challenging previous genetic-focused theories and opening new avenues for research and prevention.
New research links long-term exposure to sulfur dioxide from fossil fuel combustion to an increased risk of developing ALS, highlighting the potential health impacts of air pollution from mining and energy production, though causation has not been established.
A Canadian study links higher exposure to sulfur dioxide, a pollutant from fossil fuel combustion, with an increased risk of developing ALS, highlighting the need for stricter air quality regulations despite current guidelines.
Eric Dane missed the 2025 Emmys due to a fall that required stitches, revealing his ALS diagnosis and expressing his determination to fight the disease for his family. His wife shared the emotional impact on their daughters, and Dane remains hopeful and committed to advocacy for an ALS cure.
Originally Published 3 months ago — by deadline.com
Eric Dane missed a planned Grey's Anatomy reunion at the Emmys due to a fall caused by his ALS diagnosis, which required stitches and prevented him from attending the event and reuniting with colleagues like Jesse Williams.
Actor Eric Dane, diagnosed with ALS, is advocating for the renewal of the Accelerating Access to Critical Therapies for ALS Act to support research and patient access to treatments, while also sharing his personal fight against the disease to raise awareness.
Linda Murphy, a Massachusetts woman who battled ALS and breast cancer, became a viral sensation after writing her own humorous obituary that highlighted her resilience, humor, and call for kindness, while also donating her brain for ALS research.
A study suggests ALS may be an autoimmune disease where CD4+ T cells attack neuron proteins, with patients showing different survival times based on their immune response; boosting protective T cells could lead to new treatments.