"Understanding Fragile X Syndrome: My Daughter's Diagnosis"
Originally Published 1 year ago — by Newsweek
A mother shares her experience of participating in a Stanford study on Fragile X, a genetic condition causing developmental problems, with her daughter. The study involves wearing NIRS caps to map neuro-responses and evaluate how girls with Fragile X connect and collaborate with their closest ones. The mother reflects on the challenges and adjustments in her relationship with her daughter due to the diagnosis, and the impact it has on their everyday interactions and future plans.