"Mother's Hope: Seeking a Cure for 8-Year-Old Son's Rare, Fatal Disease"

Emily Blackburn's 8-year-old son, Grayson Naff, was diagnosed with the rare, genetic, fatal disorder Batten disease, which will lead to vision loss, cognitive decline, and ultimately death. The family is navigating the challenges of managing Naff's symptoms and raising funds for his costly care, while hoping for a cure to be developed in his lifetime. Batten disease currently has no cure, but research and medical efforts are ongoing to find treatments tailored to its different subtypes.