All articles tagged with #rare tumor
A toddler named Jonny was diagnosed with a rare and aggressive cancer called malignant rhabdoid tumor after experiencing frequent infections, but through personalized treatment, he responded well and is now in remission, highlighting the importance of early detection and specialized care in rare pediatric cancers.
A woman in India was misdiagnosed with pregnancy when she actually had a rare and aggressive form of ovarian cancer called non-gestational ovarian choriocarcinoma, which mimicked pregnancy symptoms and caused a positive pregnancy test. The cancer was successfully removed, and she responded well to treatment, but the case highlights the importance of accurate diagnosis for rare tumors that can resemble pregnancy.
A 16-year-old girl developed a rare type of pilomatricoma, a benign tumor that typically grows on the head or neck, on her shoulder. The tumor, known as a "bullous pilomatricoma," appeared as a red lump and grew to cover an area of about 5.5 square inches. It oozed a jellylike substance when punctured. The cause of this type of tumor is unknown, but two theories suggest that lymph buildup or the release of enzymes near the tumor may contribute to its bulbous appearance. The tumor was surgically removed, and there has been no recurrence after one year of follow-up.
Miranda Edwards, who has been living with a rare, terminal disease since 2014, has learned to thrive despite her diagnosis. She offers three pieces of advice for self-care and patient advocacy: don't be shy when it comes to fighting for your life, learn how to take care of yourself, and find your community. Edwards has become her own best advocate for her health, double-checking her lab results, looking for trends in her symptoms, and staying up-to-date on the latest research. She also adapts her self-care needs to each season of her life and relies on her small but mighty in-person support system and online communities for people with pheochromocytomas.
Miranda Edwards, who has been living with a rare, terminal disease since 2014, has learned to thrive despite her diagnosis. She offers three pieces of advice for self-care and patient advocacy: don't be shy when it comes to fighting for your life, learn how to take care of yourself, and find your community. Edwards has become her own best advocate for her health, double-checking her lab results, looking for trends in her symptoms, and staying up-to-date on the latest research. She also adapts her self-care needs to each season of her life and relies on her small but mighty in-person support system and online communities for people with pheochromocytomas.
Miranda Edwards was misdiagnosed with anxiety for years before being diagnosed with a rare adrenaline-secreting tumor at 19 years old. The tumor caused her to have a heart attack, two strokes, and nearly die. Despite surgery to remove the tumor, it grew back and spread to other organs due to medical gaslighting and delayed diagnosis. Edwards now shares her journey on social media to inspire other patients and describes herself as "Terminal & THRIVING."