"Tragic Battle: 8-Year-Old Virginia Girl's Slow Decline into Childhood Dementia"

1 min read
Source: Daily Mail
"Tragic Battle: 8-Year-Old Virginia Girl's Slow Decline into Childhood Dementia"
Photo: Daily Mail
TL;DR Summary

Eight-year-old Abby Alvey from Virginia is suffering from Niemann Pick Type C, a rare genetic disease that causes physical and neurological symptoms, including childhood dementia. Abby's body is slowly shutting down from the terminal illness, and her life expectancy is uncertain. Despite the challenges, Abby's family is determined to make the most of every moment with her, creating a superhero persona called "Abby Strong" to inspire her and others. They have set up a GoFundMe page to support her medical treatments and therapies. The family hopes that Abby's story will raise awareness about the importance of newborn genetic testing and screenings for rare diseases. Niemann Pick Type C is an inherited disease that affects the body's ability to transport cholesterol and fatty substances, leading to the buildup of toxic waste in cells. Currently, there is no cure for the disease.

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